Myotonic Dystrophy Foundation

Myotonic is a patient organization focused solely on myotonic dystrophy. Based in the Preservation Park in Oakland, California, Myotonic was founded by families with members suffering from myotonic dystrophy. It is an American 501 non-profit organization.

History

Myotonic evolved during the International Myotonic Dystrophy Consortium in October 2005 to create a national advocacy organization for people living with myotonic dystrophy. In September of 2019, the organization rebranded to Myotonic from the Myotonic Dystrophy Foundation.

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